How to keep a patient support group running?

نویسندگان

  • Karla Padilla Gomez
  • Elzbieta Blum
چکیده

The achievements and challenges of modern society have an important impact on patients with rare diseases and on the patient support groups that have been established in many countries. Although people are now able to exchange information from one corner of the world to another just in a minute via internet, personal relationships and wholehearted personal communication have remained the best ways to share experiences and to support each other. Nowadays patient organizations may also contribute to shaping patient-centred health policies by describing their experiences and expectations on diagnosis and care. Networking with medical experts often leads to improved access to medical services and novel research findings. We will report on the experiences of two young patient associations in Mexico and Poland.

برای دانلود رایگان متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید

ثبت نام

اگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید

منابع مشابه

حقوق بیماران و مسؤولیت مدنی پزشکی

These days, because of cultural development and mental growth and also improvement in human culture more attention is given to the patient’s rights, so that governments in different societies attempt to support this damageable group more than before. Always in the realm of the Law science, also, some questions were posed regarding this subject and jurisprudents, according to their capa...

متن کامل

بررسی مقایسه‌ای تاثیر دویدن به جلو و عقب در برنامه تمرینی تخته تعادل بر روی تعادل استاتیک

  This research was conducted to examin the effects of adding forward running and backward running training in a wobble board training program on some of functional static balance tests. In this research sixty-five young healthy males (13-17years) were selected by nonprobability sampling and assigned randomly into three groups.   Group I included 25 subjects that performed 10 minutes forward ru...

متن کامل

پروند ه ی سلامت فردی، مراقبت بیمارمداراز طریق اطلاعات بیمارمدار:دیدگاه بیماران بیمارستان های آموزشی شهر کاشان

Introduction: Personal Health Records (PHR) allows access patients complete health information, and support of self-care improve quality of care with education, facilitate patient – physicians and. This study was aimed to determine view of points of inpatients about PHR. Methods: In a cross-sectional study was done on 461 patients at hospitals affiliated in Kashan University of Medical Sciences...

متن کامل

Beyond Compassion: Replacing a Blame Culture With Proper Emotional Support and Management; Comment on “Why and How Is Compassion Necessary to Provide Good Quality Healthcare?”

The absence of compassion, argues the author, is not the cause of healthcare failures but rather a symptom of deeper systemic failures. The clinical encounter arouses strong emotions of anxiety, fear, and anger in patients which are often projected onto the clinicians. Attempts to protect clinicians through various bureaucratic devices and depersonalization of the patient, constitute as Menzies...

متن کامل

تاثیر یک جلسه فعالیت ورزشی هوازی تداومی و تناوبی بر پاسخ HSP72 کورتیزول و کراتین کیناز خون

Introduction & Objective: Heat shock proteins help the cells’ ability to keep their structures against different stresses. The purpose of this study was to investigate the effect of one ses-sion continuous and intermittent aerobic exercise on blood responses of HSP72, cortisol and creatine kinase (CK). Materials & Methods: This study is semi-experimental in which 21 male student athletes were...

متن کامل

ذخیره در منابع من


  با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید

عنوان ژورنال:

دوره 8  شماره 

صفحات  -

تاریخ انتشار 2012